Archive for ‘Remembrances’ Category

What would I ask Mom if she were still living?

Thursday, May 10th, 2012

My mother died on April Fool’s Day in 1993. She was only 72. I was still in my early 30s — too young and shortchanged from a mother’s lifetime of wisdom.

My arrival into this world was a disappointment. Although, I arrived with all my fingers and toes, she had her heart set on another boy. I guess I was a rebel from birth (being born a girl) and a lot more energetic (boisterous and less obedient) than my older sister and brother.

I could never be her favorite — at least, not beyond an afternoon. I brought report cards home with good academic grades but poor marks for conduct. I marched down to the basement to receive my punishment. (WOW, we’ve come a long way … today, Adult Protective Services would get involved after such discipline!) When I acted up (often), she threatened to take me to the orphanage. In fact, she offered me to the Principal’s secretary who spoke fondly of children despite being childless. The secretary reminded me of Edith Bunker (All in the Family). Perhaps, the threat of a new parent is why I never warmed up to either her or Archie’s Edith. (I can imagine her thinking, You can’t give away children in America!)

As I move beyond the half-century mark, I find myself thinking more and more about my mother.

A survivor of the Turkish attempt at an Armenian genocide during 1915-1923, she moved from her birthplace of Aintab (a former heavily Armenian-occupied town in Turkey); to Aleppo, Syria; and then to Beirut, Lebanon. In 1949, she immigrated to the United States. She arrived with an eighth-grade education, a lot of spunk and vigor, a sense of humor, and big dreams.

Martin and Arpy at Brenda Avadian Graduation

Martin and Arpy Avadian beam proudly when their daughter Brenda receives her Masters degree.

Marrying shortly before her visa expired, she settled in America, raised three children with the values of hard work and determination. She raised each of us with the confidence to achieve and beamed proudly when I earned my Masters Degree from the University of Wisconsin Milwaukee in 1982.

She didn’t talk much about the “old country.” However, when I questioned her enough, she shared a few joyful childhood memories in “Haleb” (Aleppo). After the family moved to Beirut her stories were mostly about her two sisters (she was in the middle) and that cute Frenchman with a mustache who wanted to spend time with her. (more…)

Hiding from the Rain – A Loving Alzheimer’s Story

Friday, May 4th, 2012

Jeana Potthoff and Rich Roman wrote a song entitled Hiding from the Rain.

We hope the song will touch people’s hearts and move them to support organizations working on a cure and providing services to the caregivers.     — Rich Roman

Rich made the song into a video.

Rich’s and Jeana’s families have been impacted by Alzheimer’s –Jeana’s grandparents and Rich’s father (dementia).

This film is dedicated to
the caregivers who tirelessly give their love and help
to those afflicted with the devastating disease of Alzheimer’s.
The victims of the disease will forget us.
Let’s Not Forget Them. 

This touching video unfolds in a cafe and through the lives of a loving couple who is torn by the onset of Alzheimer’s. (Time: 6 min. 37 sec.)

For more information and the lyrics click on Hiding from the Rain website.

Also visit the American Health Assistance Foundation’s Feature about Hiding from the Rain.


Why do we continue visiting?

Friday, April 27th, 2012

Why do we continue visiting a nursing home, adult day care, residential care home, assisted living community, or even a family, after a loved one is gone?

For many reasons …

  • Because other families and the staff become a part of our family.
  • To celebrate milestones.
  • To have fun.
  • To be inspired.
  • To learn what’s important in life.
  • To remember.

 

Read 3-short stories below about Lisa, Myron, and Evelyn.

LISA

97-year old Lisa and her 53-year old boyfriend

97-year old Lisa and her 53-year old boyfriend

Last weekend, we drove 177 miles round trip to share Lisa’s 97th birthday. She used to care for her “Chapparo” — how she referred to her beloved husband, Jose, who she described as her Little Man. I struggled to remember his nickname and called him her “chalupa” (boat). She’d laugh and correct me. It only took me several years to learn the difference.

Lisa now lives a month at a time with each of her children. She takes turns enjoying different cities and their love. I’m glad they share her care, as she is a handful! After Jose’s passing, she claimed my husband as her boyfriend. Her family is well-aware of this and laughs.  Imagine that — my husband at 44 years her junior! Una Latina con un gringo!

We just love Lisa’s spirit and zest for living!

MYRON

After my father’s stroke resulting from Alzheimer’s, which took his life, I continued visiting the families who like me had placed their loved ones in the care of full-time professionals. The families and staff who gave life-giving and loving care became my family.

The following edited excerpt is from Finding the JOY in Alzheimer’s – When Tears are Dried with Laughter (pages 135-136). For more excerpts, click on Excerpts – Finding the JOY in Alzheimer’s: When Tears  …

Myron [name changed] was assigned to the empty bed in the semi-private room with my father. He reminded my husband and me of my father, so we enjoyed his antics.

Myron runs the place.

Staff members cringe when I jokingly say this, because Myron actually tries to run the place!

(more…)

Too Much Information Too Little Time

Wednesday, April 4th, 2012

Up until 1960s, my Pen Pals and I would mail handwritten letters to each other.

In sixth grade, I received a set of felt-tipped colored pens. These were magical in that I now could express emotions through different colored highlights and designs. 

My penpals (used as one word, today) complimented me on my penmanship. I wrote almost perfectly,  just like the white script letters on the green cards that used to line the tops of school  chalkboards across America.

Back then, I couldn’t wait to get a letter from one of my pals. They’d use fancy stationary with pretty designs, something I never had.

Time moved a bit slower forty years ago and we were more patient.

We had to be.

Remember party lines?

Five families shared one phone line.

If you wanted to make a call, you’d lift the receiver and if someone was already talking on the line, you’d quietly hang-up and try again later. If there was an emergency, you’d ask the caller on the line if s/he could hang-up so that you could make your call.

Try explaining a shared line to your teen who’s busy talking on the phone, while playing a game or surfing the Internet using a tablet.

Remember looking forward to the mailman who carried the big blue bag on his shoulder as he walked up and down the block of your neighborhood dropping letters in each box? You were lucky if you got mail more than several times a week.

What happened?

Those not-so-long-ago quaint times existed while the world’s population was only 3.5 billion. Today, twice as many of us are trying to drink from a fire hose delivering a thousand times more information.

The world is moving fast and TIME is our only fixed income, so it must be spent wisely and multiplexed when possible.

I read somewhere that all the information from the year 0 to 2000 is what we receive each week! My figures may not be exact, but that’s because there is so much information to remember. And if I wrote it down, where would I find it when I needed it?

It’s no wonder we fear forgetting and Alzheimer’s! Look at all that information we need to remember!

Consider that a family of four today likely has five or more phone numbers (four cell, work, landline, and fax).

Instead of 5 families sharing one phone, we went right through a worm hole into another dimension of too much information — one family has 5 phones!

Today, not only do we get daily mail from our mail carrier (half of it we don’t want or need), we also receive eMails to our one, two, or three eMail addresses. To keep track of all the eMails I receive, I have six eMail addresses. We receive text messages on our phones, FaceBook comments, Tweets, LinkedIn updates, and still the occasional fax.

There’s just too much information…and too little time.

(more…)

The Many Shadows of Alzheimer’s

Monday, March 5th, 2012

Guest Post by Sheri Zschocher

Sheri Zschocher and hubby Puzzle

Bob and Sheri Zschocher

I have been an Alzheimer spouse for four years. Today, I know more about the disease; for example, I know my husband, Bob, had it many years before he was officially diagnosed at age 64. Through this journey, I realize that Alzheimer’s disease has created a life of shadows; not only for Bob, but for me at age 54, and our two daughters.

For my husband with Alzheimer’s, dark shadows replace the man he once was as he drifts further away.

For my then teenage daughters, the shadow veiled their ability to see life for what it should be at such a tender age. Their lives have been guided by the needs of their father or by trying to support my needs as his caregiver. They retreated from these shadows seeking shelter and comfort in their own thoughts.

Sheri Zschocher and husband Bob

Sheri Zschocher and husband, Bob

Their friends did not understand how this disease that struck their father really affected our whole the family. It changed the way they view life and their experiences. It forced them to surrender the more carefree way of life that their friends were living, resulting in unspoken jealousy. Today, as young adults, the girls are starting to talk about their feelings. I worry whether such jealousy may transform into anger later in their lives, creating yet another shadow.  As a mother, my heart aches for them.

For me, there are two shadows of loss–one, not being able to put my needs ahead of my husband’s; and two, losing an intimate martial relationship as Alzheimer’s causes Bob to grow more distant.

As Bob’s caregiver, the shadow creates an invisible and unwelcome shield. Friends stay away because they don’t know what to say or how to help me. This shield is the barrier that prevents me from participating in life.

Caring for the shadow of the man I love, means a living life of isolation–a very lonely life. I risk becoming a darker shadow of my former self.

I need help lifting the shadows of this disease. (more…)

A Real Valentine – Caregiver Rhonda

Tuesday, February 14th, 2012

We just had to post this story by Alexandra Allred about one of our Caregiver of the Month finalists on Valentine’s Day.

Caregiver Rhonda Calk-Shalton - a real Valentine

Caregiver Rhonda Calk-Shalton

The day we met Rhonda Shalton changed the quality of our lives. I spent 15 years without help taking care of my mentally challenged son, Travis. Rhonda came into our lives just we needed her. She was so kind and gentle with Travis. Before I knew it, she had won our hearts. Years of not trusting anyone to take care of my son was behind me, I had the most caring person at my house loving my son as much as I did. Rhonda has helped Travis at all his signings for his book, King Travis, on her own time and has never missed one event he has been in. She’s a loving caregiver.
– Kristin McCullough, Travis’ Mom

Rhonda Calk-Shalton is the kind of caregiver we all hope our loved ones will have.

She came into Travis’ life at a critical time and has been a treasure to his family. For the last six years, she has been caring for a young man who has not been expected to live and held fewer expectations by the medical community.

A remarkable person with an enormous amount compassion.
– Director of a caregiver resource organization.

Twenty-two-year-old Travis’ diagnosis is complicated.

Travis and Rhonda

Travis and Rhonda Calk-Shalton (with curlier hair)

When Travis was four years old, he began having strokes. The doctors diagnosed him with a rare disease called Mitochondrial Encephalopathy Lactic Acidosis with Stroke-like episodes (MELAS). This disease results in seizures, neuropathy, myopathy, and an inability to control his body temperature, leaving Travis mentally challenged with autistic tendencies.

If this weren’t enough, Travis suffers from pica disorder–cravings for food and even non-food items. He eats anything. At 6-plus-feet and 250-plus pounds, he is so child-like, he needs to be monitored constantly so he doesn’t eat anything inappropriate.

It was strongly recommended that Travis be institutionalized because of the magnitude of his problems. Yet, over twenty years ago, his (more…)

MY BUCKET LIST progress report

Tuesday, December 27th, 2011

At the start of this year, I began a quest to do ONE NEW THING EVERY MONTH–something I’ve never done before. This was my version of a bucket list; starting empty, I filled my bucket with new experiences during the year.

Early in the year I posted a Bucket List progress report.

As this year slips quietly into 2012, here is my year-end report.

MAY:  Helped feed homeless families

How many of us have taken time to do something for the homeless?
How many of us have set foot in a homeless shelter?

Like many of you, I’ve donated money and in-kind gifts or bought someone a sandwich.

Nancy, a former long-distance caregiver, her husband, Mark, caregiver Kathy, and two ladies from their church prepared meals for fifty people at the Lancaster Community Shelter in the High Desert of California.

I asked if I could join them.

They welcomed me knowing many hands make light(er) work.

I was humbled by their graciousness to prepare Shepherd’s pie, fresh salad, and dessert. But most impressive was looking deep into the eyes of men, women, and children I was serving.

JUNE: Dismounted off a horse voluntarily

Don’t laugh!

Few know this, but I’ve been a rodeo rider from age ten until my mid-twenties. Never mind that my performances have all been involuntary! I’ve been thrown, scraped off, and even clung onto the underside of an aging mare galloping through a snow-filled meadow! If it weren’t so scary and painful; especially after being bucked off then stepped on, I might consider a career with the Texas Rodeo!

A quarter century later as I approach elderhood, my neighbor made an offer that might help me erase these early memories.

With Karin’s encouragement, I stayed on top of a horse while riding safely. Okay, so what if she was holding the lead as the horse walked around in circles? And after she led me to a block of elevated wood, I was able to safely and voluntarily dismount.

Karin gave me the gift of erasing a half-a-lifetime of negative experiences with horses.

JULY: One Unscheduled Day

Wow, July went right by.

What did I do?

I worked hard…that’s not new.

What is new is choosing ONE DAY to schedule NOTHING in my calendar. That’s right.

WOW, and that felt really good!

Mt Langley - Clear Lakes and sky above 11,000 feet

On the way up to Mt. Langley at 11,000 feet

AUGUST: Climbed 19 miles in the mountains from 10,000′ elevation to 12,300′

This is the FIRST TIME I’ve hiked 19 miles above 10,000 feet where the air is thinner and drier.

Brenda Avadian pointing to the ridge line - New Army Pass

"WOW, we were up there?"

(more…)

Our Lives Take an Unexpected Turn

Monday, September 5th, 2011

Fifteen years ago this month, my husband and I were visiting my father in Wisconsin with the idea of placing him in an assisted living community to better help him live with dementia. We called him Mardig (Armenian for Martin). As days passed, we grew overwhelmed trying to make sense of years of disorganized paperwork. We persuaded him to visit us in California. Below are excerpts from “Where’s my shoes?” My Father’s Walk through Alzheimer’s

“Where’s my shoes?” My Father’s Walk through Alzheimer'sCHAPTER 4
Our Lives Take an Unexpected Turn

David and I spent the next few days sorting through Mardig’s papers. Mardig enjoyed our genuine interest and began reflecting on events from his earlier years. His past was a mystery to us since he did not talk about his family. Old family conflicts and misunderstandings had kept his side of the family away from ours. His mother lived her final years with his half-brother in the Chicago area. After the relationship soured between my parents and my aunt and uncle, we no longer visited them. Regrettably, my grandmother died before I had the opportunity to learn about my father’s childhood.

While looking through one of the file cabinet drawers, I came upon a tattered oversized envelope. Inside was a worn brown composition book dated 1929. It was Mardig’s composition book from an adult evening class to improve his English. Inside were pages filled with selected events from his childhood. I focused on an autobiographical assignment.

At the tender age of five, Mardig and his mother narrowly missed the first genocide of the twentieth century. They left Van (in Turkey) just in time for the relative safety of Constantinople (now Istanbul).

I showed my father his brown composition book and asked him to read the autobiography and he recounted some of the stories of when he and a friend went swimming in the sea. David asked him about the journey coming to America in 1920 on the steamship Pannonia from Patras, a port in Greece. He chuckled and recounted a few stories of running around the ship and scaring his mom who was trying to keep from being seasick.

David and I pored through Mardig’s papers. It was nearly impossible to determine  what was important and what was not. We had to leaf through it all, one page at a time, being careful not to overlook something—like a $1,000 U.S. Savings Bond tucked between two sheets of scrap paper or hiding in a one-and-a-half foot pile of newspapers my brother threatened to throw away. Despite mustering some energy after discovering more details of my family history, this overwhelming task soon exhausted David and me.

I scraped off the rubber bands and unfolded a letter-sized sheet that was protecting a stack of cards. When I turned them over to look at the front side, in the upper right corner I saw “1,000” . . . twenty-eight thousand dollars in U.S. Savings Bonds.

(more…)

TCV Inspiration – Maybe

Friday, August 26th, 2011

When I wander
don’t tell me to come and sit down.
Wander with me.
It may be because I am hungry, thirsty, need the toilet.
Or maybe I just need to stretch my legs.

When I call for my mother
(even though I’m ninety!)
don’t tell me she has died.
Reassure me, cuddle me, ask me about her.
It may be that I am looking for the security
that my mother once gave me.

When I shout out
please don’t ask me to be quiet…or walk by.
I am trying to tell you something,
but have difficulty in telling you what.
Be patient. Try to find out.
I may be in pain.

When I become agitated or appear angry, (more…)

Remembering Martin Avadian – 101 years later

Monday, August 22nd, 2011

How will YOU be remembered?

Martin Avadian was born, August 22, 1910 in a major Armenian-occupied town called Van (in Turkey). He lived there with his parents until the start of the Armenian Genocide (April 24, 1915), where his father was called to help the Turks.

As a proud Armenian, my grandfather was likely forced to help in order to protect his family.

Like so many before and after him, he was murdered after the Turkish soldiers no longer needed his services. He left behind a widow and an eight-year-old (my father) to fend for themselves.

Fortunately, my grandmother was a survivor. She left the family home and all their belongings and headed to Constantinople (Istanbul). She avoided the total annihilation of the area.

By 1920 she made her way by boat, arriving in America through Ellis Island. She was to live with her sister in Chicago, until she remarried having two more boys.

The three boys worked hard to secure a piece of The American Dream.

My father married, had a son, and bought his first home with savings plus a several thousand-dollar loan from his mother that he paid back in several weeks. With no mortgage, he saved 10% of his net earnings working as a machinist at General Electric while helping raise his son and two daughters.

His last child (me) was born on his 49th birthday.

After he retired at age 65, he and my mother enjoyed traveling across America until she developed congestive heart failure. He helped care for her until she died a dozen years later.

Soon after, in his mid-eighties, Martin began showing signs of dementia. My husband and I moved him into our California home. Martin kept repeating his goal to see the year 2000. He did.

Martin Avadian died on March 31, 2001. Despite the sadness of losing him, I am glad he didn’t witness the heinous crimes committed on the twin towers in New York later that year. He would have been ninety-one.

We may wonder
Will I be remembered?
I believe we will, as long as we keep our relationships strong.
How will I be remembered?
I believe we will be remembered in countless and even unimaginable ways based on how our actions have touched the lives of others.

What are you doing today, to touch the lives of others?

Brenda Avadian, MA
Alzheimer’s/Dementia Caregiving Expert Spokesperson, Coach, & Author
Editor,  The Caregiver’s Voice Newsletter

"Where's my shoes?" My Father's Walk through Alzheimer's

Martin Avadian’s story has helped
tens of thousands around the world.
Help someone who needs an

illuminated path when caregiving–
GIVE the GIFT of “Where’s my shoes?”