February 3rd, 2012

TCV Inspiration – Video Blessing

Kate Nowak created a five-minute video blessing in 2006 and shared it with 10 of her friends. Within a week, she received 1,000 eMails…since then, Kate writes on her website that millions have viewed it.

Have you?

I learned about it over the holidays.

If you haven’t seen it, turn up your speakers, sit back, and be filled with five minutes of blessings.

To view it, click on: May You be Blessed Movie by Kate Nowak.com

Kate writes:

The Blessing Way philosophy is a simple one: Everyone is loved. Everyone is blessed. Everyone is a blessing.

… through the power and process of blessing, we become the change we wish to see…we become the blessing with which we are so richly blessed.

The Blessing Way is not affiliated with any religion or particular faith. Rather it honors all by believing that no one should be excluded because everyone and anyone can bless.

Piano Music: “Reflections in Time” Performed by David Wurst

Images provided through Shutterstock.com and BigStockPhoto.com

Writer Kate Nowak who lives in rural Texas. According to her website, “her days are spent peacefully writing a bit, pondering a lot, puttering in her garden, tending a small herd of Nubian goats, making cheese from their milk and counting her blessings, one by one by every single one.” Kate’s book, May You Be Blessed, is available through Simple Truths.

Thank you for sharing these blessings, Suzanne Richter.

February 1st, 2012

TCV’s Caregiver of the Month – Tammy Campbell

TCV's Caregiver of the Month Tammy CampbellCONGRATULATIONS Tammy Campbell for being named The Caregiver’s Voice Caregiver of the Month of February, 2012!

Nominated by friend DeAnn Higginbotham-White

In 2007, Tammy had her own condo in Miami, a nice career, and was in a long-standing relationship.

Her two sisters were giving her updates about their mom’s bouts of dementia. For example, the police picked up their mother in front of a church at 2:00 am. She told them her neighbor was trying to kill her. She could hear him sawing the house.

Tammy decided it best to move back to Buckhannon, West Virginia to help care for her mom, as her sisters were married, had children, and careers of their own.

Tammy’s love for her mother and all that she has given up to care for her…for both reasons, she definitely needs to be recognized.
– Director of a caregiver resource center and TCV Selection Committee Member

After a few months, it became apparent that her mom could NOT be left unattended. Tammy moved in and her soon-to-be ex-boyfriend returned to Miami.

As with most families, caregiving fell on Tammy’s her shoulders full time after she moved in with her mom. Her two sisters didn’t really know how to help. Meanwhile, as dementia progressed and their mother’s condition worsened, they began to understand what a responsibility Tammy had undertaken. Despite this, each was unable to help due to distance or declining health.

Tammy, has given up everything to care for someone – that, to me, is the ultimate sacrifice a person can make. She chose to care for her Mom, she didn’t have to.
– Geriatric Care Manager and TCV Selection Committee Member

Tammy bore the weight of her mom’s delusions; such as the time her mom informed her son-in-law that Tammy Read the rest of this entry »

January 30th, 2012

Three Biggest Mistakes Caregivers Make

Bart Astor

Guest Post by Bart Astor

In the seven years that my wife and I served as caregivers to her mother, we made many mistakes. Some of those I know were detrimental to my mother-in-law and some to the whole family. For example, we moved her four times in that short period–to a retirement community, to an apartment, to a long-term care facility near us, and then to another facility that provided better care at a lower price that was near my wife’s sister.

Sound Reasoning

Our reasoning behind the moves was sound. She tried the retirement community but her husband of 54 years died and she wanted to “go home.”

Nina with daughter Kathie

Nina with daughter Kathie (author's wife)

We supported her choice to live independently but that didn’t work well. She soon needed an emergency response system and we worked out arrangements with neighbors and the local police to check on her. But it was almost an hour away from us and although we visited at least once a week she soon needed more attention than she could get in that apartment. We hired people to help her but gradually she needed more help. After much discussion and repeated falls in her apartment she finally agreed to a long-term care facility. Unfortunately, it was a half hour away from us and the visiting hours didn’t work well for our schedules. It was also not near friends she had or the rest of the family. When the prices increased dramatically, we all decided she would be better off in a less expensive but nicer place near my wife’s sister in Texas. She moved there and two years later died there.

Our reasoning was sound, indeed. Or so we thought. But imagine the stress we put her through. Although we were smart enough to invite her to help in the decision-making process, in retrospect we made some huge mistakes.

Mistake #1: Not Planning

Our first mistake was that we didn’t think clearly enough about the future. How naïve we were to think she could actually live independently in an apartment, even though it was in the town she knew. She didn’t drive, couldn’t take the bus, and wouldn’t pay for a cab. How would she get around? How many of her friends would be able to visit? How many were even still around? We set up a health support system but it was not enough. Our mistake? Besides not planning, we didn’t understand. When she said she wanted to go home. She meant the past; we thought she meant Cranford. Read the rest of this entry »

January 27th, 2012

Caregiver of the Month Nominations Open

NOMINATE the Caregiver of the Month of March

NOMINATIONS NOW OPEN for Caregiver of the Month
Claire Abel - TCV's Caregiver of the Month January 2012Click on the link above to nominate The Caregiver’s Voice
next Professional or Family Caregiver of the Month.

January 2012 Caregiver of the Month, Claire writes (edited):
I thank my sister, Linda, for nominating me for this award, … it came as a complete surprise. It is an honor for me to have been chosen to receive The Caregiver’s Voice Award and I appreciate the kind words of the committee, which led to their decision.

– Claire Abel, Caregiver to her mother and TCV’s Caregiver of the Month

To read more of Claire’s comments, click on her picture and read all the other comments she’s received! WOW!

 

Beautiful Flowers DVD available at PersonCare.net

Bob Finnie of PersonCare.net has partnered with The Caregiver’s Voice to give each Caregiver of the Month a gift. Claire chose the Beautiful Flowers DVD.
Click on image for information.
Visit PersonCare.net for products to help make your life easier.

 

Claire also received a signed copies of"Where's my shoes?" My Father's Walk through Alzheimer's Searching for Cecy: Reflections on Alzheimer's“Where’s my shoes?” My Father’s Walk through Alzheimer’s and Searching for Cecy – Reflections on Alzheimer’s.   Click on book covers for more information.

Remember, Click on NOMINATIONS NOW OPEN for Caregiver of the Month to submit your nomination for TCV’s next Family or Professional Caregiver of the Month. Self-nominations are welcome.

Brenda Avadian, MA
Alzheimer’s / Dementia Caregiver, Expert Spokesperson and Coach
Author of “Where’s my shoes?” My Father’s Walk through Alzheimer’s

January 26th, 2012

TCV Interview – Can Biomarkers Really Predict AD?

The Alzheimer’s Disease (AD) Biomarker Expert Working Group just published a new paper in Neurobiology of Aging. They recommend that certain AD biomarkers be used for clinical assessments, enrolling study participants, and as an outcome in AD clinical trials.

Biomarkers, Alzheimer’s, and clinical trials can help find AD faster and can lead to more effective treatments for AD.

Really?

The Caregiver’s Voice asked two questions in reference to excerpts from Use Biomarkers in Alzheimer’s Disease Clinical Trials. (A link to the complete article is provided at the end.)

The neuropathological hallmarks that define AD are the amyloid plaques and neurofibrillary tangles found in the brains of AD patients upon autopsy. Amyloid plaques develop when the AB 42 protein accumulates in increasingly insoluble forms, and neurofibrillary tangles develop when tau proteins accumulate inside neurons and form insoluble filaments. Both AB 42 and tau can be measured in cerebrospinal fluid.

Certain imaging tests detect more “downstream” events that follow events initiated at the molecular level. For example, structural magnetic resonance imaging (MRI) can help detect neuronal loss and brain shrinkage caused by AD.

TCV Asks: How certain are the doctors of these biomarkers when their studies are being challenged by research showing otherwise normal functioning elders’ (some in their nineties) with brains (on autopsy) filled with amyloid plaques? What role do the plaques really play in Alzheimer’s progression when these instances show a plaque-riddled brain of a senior who functioned normally in life?

Dan Perry, President & CEO of the Alliance for Aging Research,  Answers: Dan Perry, President & CEO Alliance for Aging ResearchMany who follow the Alzheimer’s field are deeply frustrated with the pace of drug development and anxious to see the return of public and private investment in Alzheimer’s research leading to a cure. By convening a “Dream Team” of recognized experts to provide an up-to-the-minute and comprehensive review of available studies on potential biomarkers of Alzheimer’s disease, the non-profit Alliance for Aging Research also tasked these experts with recommending the best strategies to employ in future Alzheimer’s treatment trials based on solid evidence.

There continues to be skepticism in some quarters about the role that amyloid deposits (plaque build-up) plays in Alzheimer’s. Recent failures of late-stage Alzheimer’s trials seeking to modify the course of the disease has fed some of this skepticism and caused some to question whether the amyloid hypothesis should be pursued in future trials.

Dr. John C. Morris of Washington University, St. Louis, and Dr. Dennis J. Selkoe of Harvard, the highly-regarded co-chairs of our Working Group addressed a number of factors consistent with the amyloid hypothesis that could be responsible for the drug failures:

  1. inadequacies of the specific drugs tested;
  2. inappropriate pathobiological targets;
  3. inability to detect drug benefit, as might occur with insensitive outcome measures or if numerous trial participants were misdiagnosed and did not have AD; and
  4. the key consideration that therapeutic intervention will be most successful prior to the onset of frank dementia, in the presymptomatic or very early clinical stage of AD before substantial neurodegeneration has occurred.

The “Dream Team” authors of this manuscript approached their task with great deliberation and offered recommendations only where strong evidence is available to support their decisions.

In addition to further research that the authors recommend to achieve full validation of specific biomarkers, the Alliance for Aging Research supports additional research to explore the role of inflammation in neurodegenerative disease, as well as the proteins, genetic and environmental factors that could contribute to Alzheimer’s disease.

 

TCV Asks: How do we address potential study participants’ concern about being diagnosed then labeled and finally losing the opportunity to qualify for LTC insurance or other benefits prior to knowing such a diagnosis?

Dan Perry: The concerns of these patients are legitimate. Read the rest of this entry »

January 24th, 2012

TCV Book Review – Books that Engage and Comfort

America by Shadowbox PressI wish I had these interactive books for memory impaired adults while caring for my father. I know he would have spent hours perusing the photos, reminiscing about things deep in the recesses of his mind.  For example, the Statue of Liberty picture in the America book would have prompted memories of his experience coming to America through Ellis Island. Evelyn enjoying Dogs and Puppies book

These picture and large print books by Matthew Schneider and Deborah Drapac, BSN, RN at Shadowbox Press stimulate answers to questions we may not even think to ask.

Take Evelyn, who was a caregiver to her husband until his passing over a decade ago. During recent years, she’s been living in a residential care home. I gave her the Dogs and Puppies book knowing how much she loves animals—especially, rabbits and cats. However, Shadowbox Press the publisher of these creative interactive books doesn’t (yet?) offer a picture book with cats or rabbits.Evelyn  Reading Dogs and Puppies book by ShadowBox Press

Upon opening the Dogs and Puppies book and looking at a few pictures, Evelyn began talking about her dog Tsar. As she paged through the book, she talked about the other dogs throughout her life. I’ve known Evelyn for thirteen years and never knew dogs had been a part of her life. What a delight to see her smile as she recounted parts of her life that would have otherwise been lost. Read the rest of this entry »

January 20th, 2012

TCV Fun – Two Dogs Dining

You don’t have to be a DOG LOVER to LOVE this video!

Nono, a Golden Retriever, and Sia, a Danish Broholmer go out for a bite to eat.

If the video link does not work, copy and paste this url in your browser.
http://www.youtube.com/watch?v=EVwlMVYqMu4

Thanks, Les Hurdle for bringing this to the attention of The Caregiver’s Voice.

 

January 19th, 2012

Call for Caregiver Nominations

NOMINATE The Caregiver’s Voice Caregiver of the Month

NOMINATIONS NOW OPEN for Caregiver of the Month (of March)
Click on the link above.
Deadline: February 10, 2012

 

Claire Abel - TCV's Caregiver of the Month January 2012January 2012 Caregiver of the Month, Claire writes (edited):
I thank my sister, Linda, for nominating me for this award, which came as a complete surprise. It is an honor for me to have been chosen to receive The Caregiver’s Voice Award and I appreciate the kind words of the committee, which led to their decision.

My Mom and I have always been close but during the last 15 years, we have developed a bond between Mother and Daughter which will live in my heart forever.

I am doing this because I want to not because I have to…that makes all the difference in the world. 
– Claire Abel, Caregiver to her mother and TCV’s Caregiver of the Month

To read more of Claire’s comments, click on her picture.

Bob Finnie of PersonCare.net has partnered with The Caregiver’s Voice by offering our Caregivers of the Month their choice of gift.

For each caregiver who is recognized for the month, we will feature the gift, s/he has chosen.

Beautiful Flowers DVD available at PersonCare.netClaire chose the Beautiful Flowers DVD
Click on the image for more information.

Claire writes:
My Mom sits at the table in her room in our home with her 24-inch flat screen TV in front of her. She sits very close to it to be able to see the screen due to her Macular degeneration. I chose a gift that would benefit her, not me. She has always loved flowers and my Dad was a pianist and piano teacher for over 60 years, so the piano accompaniment on this DVD is so appropriate. She will love it!

Visit PersonCare.net for helpful products to make life easier.

Claire also received a signed copy of “Where’s my shoes?” My Father’s Walk through Alzheimer’s and Searching for Cecy – Reflections on Alzheimer’s.  Click on the book covers for more information.  Although, Claire’s mom does not suffer from Alzheimer’s, the journey of dementia (leading cause is Alzheimer’s) is similar and we hope she will be inspired and strengthened by what she unfolds in these books.

"Where's my shoes?" My Father's Walk through Alzheimer's Searching for Cecy: Reflections on Alzheimer's

 

Brenda Avadian, MA
Alzheimer’s / Dementia Caregiver, Expert Spokesperson and Coach
Author of “Where’s my shoes?” My Father’s Walk through Alzheimer’s

January 17th, 2012

WARNING – Relative in Distress Scams

“Relative in Distress” telephone scams are on the rise.

These scams are targeting U.S. Citizens from within and outside of the U.S.

FEDERAL AND LOCAL OFFICIALS WARN AMERICANS of the rise in these telephone scams.

[FBI NFBI Logoews Release] Law enforcement has seen an increase in the number of reports by victims of telephone scams where the caller impersonates a family member of the victim and concocts a phony scenario suggesting the relative is in distress. This announcement was made last month by Steven Martinez, the FBI’s Assistant Director in Charge of the Los Angeles Field Office; André Birotte Jr., the United States Attorney in Los Angeles; and officials with the United States Postal Inspection Service, the Los Angeles Police Department and the Los Angeles County Sheriff’s Department.

In an effort to reach victims before they are convinced to send money overseas, law enforcement is detailing the signs potential victims can recognize in order to identify a scheme in its early stages.

Southern California and its many retirement communities, has long been a target-rich environment for thieves intent on defrauding unsuspecting victims, particularly the elderly. While common schemes, such as counterfeit check, foreign lottery and mystery shopper schemes continue to plague victims, law enforcement is advising the public about the emergence of the “RELATIVE IN DISTRESS” (RID) scam. Law enforcement agencies have seen a dramatic increase in the number of complaints by victims of RID scams.

RID scams can vary in terms of the details supplied by the scammer, the target demographic and the location from which the scam is perpetrated, however, the general fraud is carried out as follows:

Victims are contacted by one or more individuals claiming to be a relative of the victim in a situation causing them some form of distress. The scammer advises the victim of the circumstances of their situation and invariably concludes with a plea for help in the form of cash. Victims are asked to wire money to an address, many times overseas, and in some cases will be asked to send money more than one time as the purported circumstances evolve and become more harrowing.

In some cases, the caller will introduce a third party, such as a purported Embassy official, police officer or lawyer, to the phone conversation in order to lend legitimacy to the scheme. In most cases, the caller impersonating the relative will claim to be in the hospital, in a foreign jail or in an otherwise compromising situation where cash is required immediately. In these cases, victims have claimed to be distracted by their emotion and influenced by an intense desire to assist their loves ones.

In an effort to avoid detection by law enforcement or circumspect family members, victims have reported that the fraudulent caller advised them to refrain from telling other family members about their purported plight so that they would not be embarrassed. Law enforcement theorizes that many of the perpetrators mine websites or personal social networking sites to obtain personal details about their target victims.

Three victims of the RID Scam have reported the fraud to authorities in Los Angeles and have joined law enforcement officials to tell their stories so that they might prevent others from making the same mistake. The three victims in Los Angeles collectively wired over $30,000 to foreign countries, including Lebanon, Spain, Italy, Canada, Dominican Republic and Peru.

Click on to read Elder Abuse Hits Home of how a former caregiver was scammed twice within 48 hours by her “alleged grandson” in jailed in Canada.

Law enforcement has seen reports of this scam which involve nearly every part of the world, including from within the United States. Two of the Los Angeles victims were contacted by individuals who claimed to be family members serving in the U.S. military. The fact that the family members being impersonated were actually in the military added credibility to the scheme.

Law enforcement has been successful to a degree in identifying victims and prosecuting offenders operating in the United States and from overseas, but stresses that prevention in the form of education is the key to preventing the continuous problem.

10 TIPS FOR CITIZENS WHO MAY BE TARGETED FOR FRAUD

  1. Be suspicious of any offer that sounds too good to be true.
  2. Take time to research any offers you receive over the Internet or telephone.
  3. Fraudulent telemarketers may pretend to be government officials, banking representatives or attorneys, or may send phony documents in attempts to make offers appear legitimate. Read the rest of this entry »
January 12th, 2012

Caregiving and Compassion Fatigue

Ask TCV: How do I cope with compassion fatigue?

TCV:  It is difficult. It is like walking on the tightrope of care.

As a professional (or family caregiver), you try to find that magical balance between being involved enough to provide compassionate care while fulfilling your own needs.

Yet, both family caregivers and caring professionals find it hard not to get involved; especially when feeling something for a loved one, patient, or client. When we feel something, the last thing we want to be is clinically detached. However, as professionals get more involved with clients, they risk suffering from empathic exhaustion–a kind of emotional fatigue from too much compassion.

As caregivers, we are interested in and involved in others’ lives. Helping others gives meaning.

Yet, stress can grow overwhelming among professionals and family caregivers who don’t balance their own needs while providing care; especially, while caring for a cognitively impaired individual with dementia.

Several Caregivers of the Month have received recognition for their undying commitment to provide care–for example, professionals coming into work during off time. Although, noteworthy, this comes at a risk of stress, burnout, and eventually drastic measures.

How can nurses, therapists, elder care providers, and family caregivers foresee this and take steps before we grow overwhelmed, potentially angry, or throw our hands in the air and give up?

The three-part answer to combating compassion fatigue.

Learn as much as you can about your loved one’s / care recipient’s disease/illness.
This is especially applicable to family caregivers. Knowing about your loved one’s disease takes off the blindfold of uncertainty and allows you to “map the illness” as you prepare for the journey of care.

Determine how you would like to be cared for IF you had the same disease or illness.
This is important for both family and professional caregivers. When you answer, “What kind of care would I want to receive IF I had this disease or illness?” your viewpoint changes dramatically. Read the rest of this entry »